Posted 3/13/23 (btw…partially because I love baseball…I love numbers and sequences. See the sequence in today’s date?)
He made the moon to mark the seasons; the sun knows its time for setting. -Psalm 104:19
I am still listening to Audible while I run these days. I am very much so trying to get ready for my 4 days of shark jumps in June. As I alluded to on social media and here, I am focusing on incline and stairs. Today I did 30 minutes at 15% incline at 2.6 lumbering miles per hour, then did 30 minutes on 6 on the stair machine. I then ran out of time. The time change has me zapped. 🙂 These machines, especially the way I have been using them, burn some serious calories for sure and works just the right muscles for 4 stinky days of stairs. We are still at $150 raised on a goal with a couple of more zeroes on it. Here is the link if you would consider helping me fight this disease: LINK You know, inflation even hurts research and caregiving support. They could use the help and I would, as always, be super appreciative.
Anywhoooo…tin cup down…I was on the dreadmill still listening to the same really cool audiobook. It is called The Soul of Baseball: A Road Trip Through Buck O’Neill’s America by Joe Posnanski. I really like this book!!! My last post, HERE, talked about it a little, but much more could be said…. Today I just had another quote that I wanted to share:
Tony Oliva was talking to Buck. Tony, whose name was actually Pedro…he had swapped passports with his brother Tony to escape Castro’s Cuba…was a savage hitter and fielder, especially early in his career before knee injuries limited his abilities. He was the first player in baseball history to lead the league in hitting his first two years in the league.
Buck asked him one day “Tony, when you were young, when you were hitting everything, how big did that baseball look coming up there??? I mean…It must have looked like a grapefruit!”
Tony replied “It looked as big as the moon, Buck! As big as the moon!”
Friends, a cure to dementia, once as BB-small as a Nolan Ryan fastball, is looking bigger and bigger, if you will. I really think soon, it will look as big as the moon! We need is drug class to be available to more people and we need it to be available nearby…and it needs to be covered by Medicare. Currently, to get it covered, one would have to drive to an ADRC (Research center) a couple of times a month. Only 26 states even have one…so many are going to have to drive hundreds of miles, multiple times per month, to try to get Leqembi, a drug approved by the FDA as shown to allow for, on average, 27% longer time before the symptoms get worse…and possibly longer. This whole class of drugs (Monoclonal Antibodies aka MABs) gets the same treatment in a guilt by association move that I haven’t seen the likes of since I got in trouble in 8th grade because another kid with a similar name flashed fellow students on his bus. The principal didn’t even know there was two with similar names…and chose my name out of the hat wrongly…Funny, not funny.
We need access to this drug and it needs to be covered my Medicare. Hence my trip to DC this weekend. We will advocate, we will march, we will NOT throw any chairs or sit in any legislator’s chairs and get arrested. However, friends, this one is as big as the moon…it is time to swing and swing hard. 🙂
#EndALZ
Update: Mom is doing about the same. I will see her tonight after my Weight Watchers meeting. All signs are smooth, all things considered for an end-stage mixed dementia patient. She had an arm on her and could swing the bat in her softball days. 🙂 She is still swinging for the fences and so am I.
